You can update your Registry Account Details using the Actions Button. Below, you can update medical/surgical information as well as new developmental milestones.
Thank you for being a member of the WS Registry! Your participation is critical for research that could lead to better ways of caring for people with Williams syndrome in the future!
The WS Registry hopes that you tell us about your family member with Williams syndrome and share his or her medical records.
The WS Registry also alerts you to new study opportunities.
Check out the tables below!
Surveys & Studies Just for You: If you see items in this table, you have a survey to complete or a new study opportunity to review. Surveys do not need to be completed all at once; they can take a few minutes to ~1 hour depending on specific medical history. Your time and effort are appreciated!
For your Review & Action Items: What has the WS Registry been learning from you? Links to updates are in this table. A very important link in this table is the Medical Record Release Form. Download and review it for details.
Thank you for registering your family member with Williams syndrome. Below, share YOUR information. You can share other information after you log on. We appreciate your participation!