You can update your Registry Account Details using the Actions Button. Below, you can update medical/surgical information as well as new developmental milestones.
Thank you for being a member of the Williams Syndrome Registry!
Please note, surveys are labeled “Due” when they first become available. You have 30 days to work on each survey. However, when you see the label “Due 30 days ago”, the survey will close the next day.
Begin by clicking a link on the left, below.  To view completed items, check your History or Account page. For questions, call 617-726-5318 or email
Thank you for registering your family member with Williams syndrome. Below, share YOUR information. You can share other information after you log on. We appreciate your participation!